501(c)(3) Non-Profit | Founded 2009
The Bailey Baio Angel Foundation supports children with Glutaric Aciduria Type 1 and other Organic Acidemias — providing critical resources and advocating for comprehensive newborn screening nationwide.
Our Purpose
BBAF was founded to ensure that no family faces a GA-1 or Organic Acidemia diagnosis alone — and that no child goes undetected due to gaps in newborn screening.
We fight to mandate comprehensive expanded newborn screening in all fifty states. Early detection of GA-1 and other OAs is the single most powerful intervention available — we work to make it universal.
We provide food, vitamins, and essential supplements directly to affected families. The cost of treatment is exorbitant and insurance gaps are common — BBAF fills that space with practical, immediate relief.
We connect families, raise public awareness of metabolic disorders, and work to ensure that insurers recognize the necessity of supplements and specialized foods for children living with these conditions.
Understanding the Disease
Glutaric Aciduria Type 1 (GA-1) is a rare inherited metabolic disorder in which the body cannot properly break down the amino acids lysine, hydroxylysine, and tryptophan. This leads to a toxic buildup of organic acids that can cause severe neurological damage.
Without early detection and intervention, a simple illness or fever can trigger a metabolic crisis — resulting in brain injury, movement disorders, or worse. With proper management, many children can lead significantly healthier lives.
Organic Acidemias (OAs) are a broader group of disorders with similar mechanisms. GA-1 is among the most critical because it is often detected too late under standard screening protocols.
"Early detection through expanded newborn screening can be the difference between a child who thrives and one who suffers irreversible neurological damage. That window closes fast."
ENBS is a heel-stick blood test performed shortly after birth that screens for dozens of metabolic conditions, including GA-1. Where it is available and comprehensive, outcomes are dramatically better. BBAF advocates for it in every state.
Specialized low-protein foods, medical-grade amino acid formulas, and supplement regimens are required ongoing — often costing families thousands of dollars per month. Insurance coverage is inconsistent and frequently inadequate.
Through our assistance program, we directly fund food, vitamins, and supplements for enrolled families. We also provide emotional support and connect families with others navigating the same diagnosis.
Make a Difference
100% of donations support families with GA-1 and Organic Acidemias. BBAF is a registered 501(c)(3) — all contributions are tax deductible.
501(c)(3) registered | All contributions are tax deductible
For Affected Families
If your child has been diagnosed with GA-1 or another Organic Acidemia, you may be eligible for direct support from BBAF. We provide food, vitamins, supplements, and emotional support to enrolled families.
There is no cost to apply. Our board reviews each request personally.
Fill out the assistance request with your contact info and your family's current needs.
Our board reviews all requests promptly and will follow up within a few business days.
Approved families are enrolled in our program and connected with BBAF resources and our broader community.
Fields marked * are required. We do not collect identifying information about your child.
Thank you for reaching out. Our board will review your request and follow up within a few business days.
Questions? Email [email protected]
Leadership
Common Questions
Get in Touch
If your child has been diagnosed with GA-1 or another OA, please reach out. We respond to all inquiries personally.
[email protected]